http://www.justgiving.com/Yvette-Hughes1 http://www.justgiving.com/yvette-hughes1
please visit Yvette's just giving page and pledge your support to Sturge Weber UK.
Yvette is running a half marathon on 10 February to raise money for Sturge Weber UK and needs your support : )
I am touched that she and others have chosen to raise money for Sturge Weber UK, it gives me the motivation to try and spread awareness even more about the rare condition to get others involved in raising money for the charity.
Please also take a look at http://www.justgiving.com/david-needham1 - Hallie's Grandad is raising money for Great Ormond Street Hospital as they have, amongst other amazing specialist services, a Sturge Weber Clinic - the only one in the UK.
Also...! My husband (Hallie's daddy) Graham has a just giving page http://www.justgiving.com/graham-davidson (you can find his page by typing in Hallie Davidson) Graham is raising money for Sturge Weber UK
There are more fund raising events coming up this year that will be raising money for Sturge Weber UK - I'll keep you posted! xxx
It is wonderful that so many people are becoming aware of this rare syndrome and working hard to raise money for the charity.
ReplyDeleteThank you all. xx
Hello
ReplyDeleteI write you from spain. Sorry for my english. I am a mum of a sturge weber boy. He is eleven years now, and he is is happy and lovely. Reading your blog i have remember my firt years, when my boy had epilepsy issues and all is new. But times go on and seizure go off and now he is a happy boy. I hope Hallie can develope as well, so i send you all my love.