Wow what an afternoon!! I haven't managed to count the money we've raised yet as every time I try my little boy Seth says he wants to "help"! But I think it's over £100 : )
We had a guess the bear's name and a lovely young boy (around 7 years old) won by guessing the name Buddy - he was very pleased
We raffled a chocolate house and I made Christmas cards and bracelets which sold well. The Marlcliffe art club Christmas cards didn't sell as well as I had thought but I will try again next week!
Hallie got sleepy half way through the Fayre and wanted a snooze bless her but the hustle and bustle was all too much. She wore her Christmas outfit especially and sat in her pram while mummy and grandma were busy on the stall.
Most importantly I managed to hand out a lot of leaflets and hopefully this will help spread awareness - I chatted to quite a few parents and explained the syndrome. The first parent I chatted to told me her son had recently passed away after having a brain tumour - this made me even more aware of how lucky I am to have Hallie in my life and how precious life is and how easily it can be taken away from us.
There were a few people who approached the stall to just give a donation without buying anything - you could see by the look on one elderly man's face that he had experienced Sturge Weber Syndrome some way in his life. All in all it was a great event and I would love to do more : )
I handed out leaflets asking parents to contact me if they would like me to organise a book party (in which I will link fundraising into the ordering of Usborne children's books)
Hallie is going on her first train journey next Tuesday, tickets are booked, we're finally off down to London to see the consultant in the specialist clinic at Great Ormond Street. I'll keep you updated on what is said.
I'm now going to have a well earned glass of wine with Graham and most likely fall fast asleep on the sofa!
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