After spending the last four weeks worrying about what the scans of hallie's brain might show, today we got a proper chance to view the numerous scans and put our questions to the neurologist. Although to be honest I don't feel I have learnt much more about hallie's condition other than where on her brain she has the birthmark (patch of blood vessels/stain) whatever you want to call it!
Hallie has a patch of blood vessels on the right side of her brain, underneath where the port wine stain on her scalp is. You can't really see the port wine stain on her scalp because of her beautiful mop of hair : )
The neurologist then did a few physical tests on Hallie to rest her reflexes and how she used each side of her body, particularly her hands. Hallie wasn't that co-operative but that's not surprising since she woke up with a stinking cold this morning. He said he wasn't too worried about how she was using her hands at the moment but she would need to be checked regularly as these things usually become more obvious as a child reaches 12 months.
He didn't really put a plan in place and said the usual "it's a case of waiting to see" which is extremely frustrating. I wish I knew exactly what was going to happen Hallie and when.
Now we have the Great Ormond Street appointment in December to look forward to - I am looking forwards to meeting the consultant at their Sturge Weber Clinic as my friends in the Sturge weber UK Facebook support group have sung her praises many times and I'm hoping she will provide us with a lot more information (which will hopefully make things a lot clearer as I feel a bit fuzzy at the moment)
Thanks for reading : )
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